Esteemed member of CurePSP's Board Leadership committee, Jeffrey S. Friedman MD, PhD, has been unanimously elected to the board of Celsense, Inc. Celsense, Inc. develops and offers novel pre-clinical and clinical-grade products that enable the non-invasive imaging of cells in vivo using MRI. The company’s lead product Cell Sense is a patented fluorocarbon tracer agent used to safely and efficiently label cells ex vivo without the use of transfection agents.
Cure PSP Grantee Rosa Rademakers will receive one of the most prestigious honors in neuroscience, the 2016 Potamkin Prize for Research in Pick’s, Alzheimer’s and Related Diseases. She will be given the prize, which includes a $100,000 cash award, Monday during the 68th annual meeting of the American Academy of Neurology, in Vancouver, British Columbia. The prize also includes the opportunity to deliver a 20-minute lecture during the meeting.
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 710 rare disease patient organisations in 63 countries. CurePSP is delighted to join with the voices of 30 million people affected by rare diseases throughout Europe to unite, expand and reinforce the rare disease movement of patient organisations and patient advocates around the world.
The Patrick Risha CTE (Chronic Traumatic Encephalopathy) Awareness Foundation is a Pennsylvania non-profit volunteer based organization. It was created in Patrick’s memory to help prevent CTE in future athletes and provide a resource for understanding the disease, how it is caused, and its relevance in youth sports.
This study will evaluate the safety and tolerability of multiple ascending intravenous infusions of BMS-98616, and assess the pharmacodynamics of BMS-986168 on cerebrospinal fluid (CSF) extracellular tau (eTau) concentrations in patients with PSP.
To participate, call the Janix Call Center at 702-487-0133, and refer to this study by its identifier: NCT02494024.
The creation of CurePSP Canada was spearheaded by people who have experienced the devastation and frustration common to those affected by rare diseases. We strongly believe that to make progress in the diagnosis, treatment and ultimately a cure for PSP, CBD and other neurodegenerative diseases, there needs to be a dedicated organization to increase awareness, assist families and care partners who are suffering and drive fundraising to aid in critical scientific research.
CurePSP Canada will play a critical role in developing resources for those coping with these diseases, as well as care partners and healthcare professionals who are most often unaware of rare diseases like PSP and CBD. CurePSP Canada will host family conferences and other events to help reduce isolation by bringing Canadians together.
CurePSP Canada is dedicated to helping Canadians connect with vital resources such as personal support services, caregiver relief and respite programs, and long-term care. It can be difficult to know where to go to get information and apply for programs.
In Ontario, for example, the local Community Care Access Centres, or CCACs, provide access to day programs and in-home support, and also arrange admission to long term care facilities. You might call a CCAC if you have been released from the hospital after surgery or a serious illness, your neighbor needs a little extra help to cope at home, your child needs support from a health professional at home or in school, or your parent is no longer safe living alone and is ready to move into a long-term care home. Remember, anyone can make a referral to a CCAC - it does not have to be a healthcare professional.
Please consider making a gift to support Canadian families affected by PSP, CBD, MSA and related brain diseases -- your donation can make a difference. At this time, only checks, payable to CurePSP Canada, are being accepted. Please send your donation to:
P.O. Box 40 Station Main
Kingston, ON Canada K7L 4W6
Thank you for your generous support!
We are currently looking for volunteers to help evolve CurePSP Canada.
If you have an accounting/financial background, experience with budgets or an aptitude for figures, consider voluteering for our Finance Committee.
If you have fundraising experience or an interest in fundraising, consider volunteering for our Fundraising Committee, .
If you have experience/aptitude for research and writing to help develop and update the website and reference materials, consider volunteering for our Website and Educational Materials Committee.
Want to contribute, but not yet sure how? Contact Mary-Ellen Duncan at email@example.com.